The 5th annual Great Strides for Cystic Fibrosis (CF) walk is taking place on
Sunday, September 25, 2016 at Vincennes University’s track in hopes
of raising money for CF research and awareness for Cystic Fibrosis. Registration
begins at 12:30 p.m. (EST) and the opening ceremony starts at 1:30 p.m.
Cystic fibrosis is a life-threatening, genetic disease that causes persistent
lung infections and progressively limits the ability to breathe. In people
with CF, a defective gene causes a thick buildup of mucus in the lungs,
pancreas and other organs.
In the lungs, the mucus clogs the airways and traps bacteria leading to
infections, extensive lung damage and eventually respiratory failure.
In the pancreas, the mucus prevents the release of digestive enzymes that
allow the body to break down food and absorb vital nutrients.
Donations have helped researchers find a major breakthrough in Cystic Fibrosis
by introducing a new drug, Orkambi. The U.S. Food and Drug Administration
approved the first drug for CF, directed at treating the cause of the
disease in people who have two copies of a specific mutation.
Orkambi is now approved to treat CF in patients 12 years and older, who
have the F508del mutation, which causes the production of an abnormal
protein that disrupts how water and chloride are transported in the body.
Having two copies of this mutation (one inherited from each parent) is
the leading cause of CF.
“Since 1955, the Cystic Fibrosis Foundation has been the driving
force behind the pursuit of a cure. Nearly every CF drug available today
was made possible because of Foundation support,” stated Tammy Howell,
Good Samaritan Respiratory Therapist and Event Chair. “Through its
efforts, the life expectancy of a child with CF has doubled in the last
30 years, and currently 65% of the CF population has access to medication
that serves as a daily cure (Kalydeco & Orkambi). Many people with
the disease can now expect to live into their 30s, 40s and beyond.”
This year, there are 13 registered teams and the fundraising goal is $30,000.
The CF walk in Terre Haute has also decided that it will merge with the
Vincennes walk this year to increase awareness and fundraising dollars.
Sandwiches, provided by Jimmy John’s, chips, cookies and drinks will
be provided for walkers, and a silent auction, with approximately 80 to
100 items from local businesses and organizations, will be held.
Each person who collects $100.00 will earn an official Cystic Fibrosis
Great Strides t-shirt. Additional prizes will be available and everyone
is guaranteed to have a good time.
As part of the team’s fundraising efforts, Good Samaritan is partnering
with local restaurants to raise money for the Cystic Fibrosis Foundation.
Procopio’s hosted a successful fundraiser on Wednesday, August 17,
and donated 15% of its sales from 5 – 8 p.m. to the Cystic Fibrosis
On Monday, September 12, Dogwood Barbeque will also host a fundraiser from
4 – 8 p.m. and donate 25% of their dine-in sales to the foundation
and Great Strides Walk.
Please call Tammy Howell at 812-885-3215 or 812-899-2146 for more details
and information about how you can be involved. To make a donation, join
a team, create a team or sign up as an individual walker, go online to